What A Day

Friday, March 30, 2012
What a day…

We arrived at clinic today at 8:30am, got to our room, got Titus’ port accessed, and labs drawn. He was in a bad mood, having not eaten since the night before and just not wanting to be anywhere but home…

The Doctor came in to do the bone marrow aspiration/biopsy and lumbar puncture with Methotrexate. The lumbar puncture and med administration went smoothly, the bone marrow was a little painful poor little guy. During the procedures he was under conscious sedation, and he told us “I am a happy boy now”, the only time he was happy today.
Once those were done he was able to eat finally, and his mood was elevated a bit.
We noticed his heart rate was rising and was in the 180′s to 200, which is pretty high, so the nurse began routine vitals…The doc was concerned about a possible infection, so he ordered blood cultures. After watching his heart rate for about an hour, and it not going down, the doctor ordered IV fluids also. He got fluids over about two hours and his heart rate ended up in the 140′s to 150′s.
We finally got to take him home around 3pm and were told to keep an eye on his heartrate and temperature. The clinic will call us if there is anything abnormal with the blood cultures.
He has been asleep pretty much since we got home.

The plan for his treatment over the next month is weekly lumbar punctures with Methotrexate (chemo) administered into the spinal space, and a daily oral chemo at home called Merpcaptopurine. He is off the steroid (Dexamethasone) for now which should help his appetite and mood return to more “normal”…although I’m not sure what normal is at this point for our little man.

Please continue to keep our Titus in your thoughts and prayers.