*****UPDATED with photo from Friday, April the 13th at the clinic. He was still loopy from his sedation and munching on goldfish graham crackers. He may not look happy in this picture, but he was being rather goofy!
These last two weeks have gone well for Titus. He is getting strength back in his legs, although he isn’t running yet, he does speed walk around the house daily. He is still wobbly when he bends over/gets up off the floor, and needs a hand going up stairs. He is focused on playing more and not napping during the day anymore, unless mommy says its nap time.
The clinic appointments the last two weeks have gone pretty smoothly. His blood counts are staying within a decent range (I will post an informative post on his blood counts soon as a reference), and he is such a good patient. His doctor and nurses compliment him every week, saying how they wish all their patients were as awesome as Titus. Not to say he doesn’t get nervous when his port is accessed, or when he knows the Doc is about to do the lumbar puncture, but even with the nerves, he is so brave! He takes his at home meds like a champ, we are so proud of him! He has another lumbar puncture with intrathecal Methotrexate next Friday, then he gets somewhat of a little break from them. (If I ever mention a med or procedure that you have a question about, remember to check out my posts “treatment map” and “medication list” for more explanation).
Titus’ favorite things to do right now is play with his legos, making lego guns to go along with his toy guns. He saves us daily from zombie invasions ;). He received a “bag of fun” from a wonderful organization last week, and got his own Nintendo DS with it. He is becoming a video gamer like his daddy! And I actually don’t mind! He also got some cool crafts that we’ve been working on, along with a number of other toys. This organization makes sure that every child with a new cancer diagnosis receives a “bag of fun” filled with fun things to do during treatments etc, they are pretty wonderful.
As for the eardrums (from the title of the post) this is in regards to Titus’ sister Aubri! She had tubes placed in her ears when she was a year old, due to horrible ear infections. They have since fallen out, and her left ear didn’t heal properly leaving a small hole in the eardrum. She has a 20-30 decibel hearing loss in her left ear because of this, and will be having outpatient surgery April the 24th to patch the hole. The Doc told us she should be back to her old self the next day, and the surgery should correct any hearing loss, so we are praying that will be the case! She has been such a wonderful help and playmate for her brother and has had such a great attitude so far with everything. Please pray that her surgery goes smoothly!
We will be wishing Titus’ grandpa a happy birthday this weekend, and enjoying a visit from my aunt! I hope that all of our readers/prayer warriors have a wonderful weekend with family and friends. Thank you so much for your continued prayers! We love you!
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