Well, we now have two weeks “off” of chemo, Titus has completed the delayed intensification phase of his treatment, yay! His ANC has stayed just above 500 over the last three weeks which is good, not great but good. He needed a blood transfusion last Friday (his hemoglobin was 7.7, normal is above 11), and today he received a platelet transfusion (his platelets were 11,000, transfusions are given after it is under 20,000). Starting September the 7th he will begin the next phase, which includes 2 lumbar punctures, then methotrexate and vincristine every 10 days. This phase lasts 2 months and then we begin long term maintenance, which is the monthly visits and lasts about 2.5 years. Time has been flying over the last 5.5 months, days running into weeks, weeks running into months…He has made it this far without any serious illnesses and with minimal side effects. I believe that all of your prayers have had something to do with that! Thank you to all of you who have been faithfully lifting him, and the rest of our family in your prayers.
Titus will be evaluated by a physical therapist in a few weeks for leg and ankle weakness that has been caused by a couple of his chemo’s. Even with that, he is a busy little guy and besides his cute baldish head, you would never know he was sick. It is amazing how little leukemia has done to slow him down, and for that I am so grateful. As a mom, his disease is never far from my mind, but when I see him being silly with his sister, it does so much to ease the worry.
Please don’t forget Titus as he has a long road ahead of him, one that will never truly end. With many possible lasting effects from chemo, and the chance of coming out of remission always in the air, I am praying for his future now as much as his present.
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